European Organisation for Rare Diseases
Patient-driven alliance for rare disease research and advocacy in Europe.
EURORDIS-Rare Diseases Europe is a non-governmental patient-driven alliance of patient organisations and individuals focused on rare diseases. It promotes research and orphan drug development, and works to improve quality of life for people with rare diseases in Europe. Founded in 1997, it represents over 960 rare disease organisations across 63 countries, covering more than 2,000 rare diseases. It was the founding partner of Rare Disease Day in 2008 and remains its lead coordinator.
Quick Facts
- Leader
- Jean Saslawsky
- Established
- 1997
Facts from the source article.
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